Health resources

Basic Health Information for WA

Washington State Health Care Authority

Batten Disease Support and Research Association

BDSRA has compiled a list of testing centers in the United States and several other countries. If you would like to share your diagnostic journey or support the organizations goals around better and faster diagnosis for Batten disease please reach out to us a info@bdsra.org.

Care Notebook Documents and Forms

Organizing your child’s health information not only helps you, but can help providers or other caregivers to better know and support your child. We spoke with parents to hear what they have learned about organizing all the paperwork, appointments, schedules and other information needed to care for their child.

CdLS Society

Cornelia de Lange Syndrome Foundation

Center for Children with Special Needs (CSHCN)

After 20 years serving families of children with special needs, due to a loss of state funding, the Center for Children with Special Needs has closed its doors effective September 30, 2018. During the coming months, many resources on CSHCN.org will become available on SeattleChildrens.org. It has been a pleasure serving you, getting to meet you, and helping you find resources for your child. Thank you.

Cerebral Palsy Guidance

Their website cover medical information, including symptoms and treatment, as well as daily living topics, including counseling, abuse, college/careers, bullying and more.

CHADD - Children and Adults with Attention-Deficit/Hyperactivity Disorder

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) creating and implementing programs and services in response to the needs of adults and families affected by ADHD through collaborative partnerships and advocacy, including training for parents and K-12 teachers, hosting educational webinars and workshops, being an informative clearinghouse for the latest evidence-based ADHD information, and providing information specialists to support the ADHD community.

Child Health Information and Resources

A Division of Healthy Childcare Consultants, Inc.

Child Welfare Parent Partner Mentoring Program

Child Welfare Parent Partner Mentoring Program

Dental Care

Website designed to link individuals with disabilities to dental professionals.

Emergency Evacuation Preparedness: Taking Responsibility for Your Safety

How might a disaster affect you? Could you make it on your own for at least three days? After a disaster, you may not have access to a medical facility or even a drugstore, so it’s crucial to plan for the resources you use regularly, and what you would do if those resources are limited or not available. Additional planning steps should include:

Healthcare Services and Supports WA

Washington State Health Care Authority

Nutrition For Children With Special Health Care Needs in Washington State

This project is a collaboration between the Children with Special Health Care Needs Program in the Department of Health, and the Center on Human Development and Disability at the University of Washington in Seattle, WA.

Seattle Children’s Linkages Newsletter Online

Due to loss of funding from the Washington State Department of Health as of October 1, 2018, the Linkages newsletter will no longer be published. Please contact Beth.Crispin@seattlechildrens.org if you have any questions.

Seattle Children’s Medical Staff

The active medical staff at Seattle Children's Hospital is comprised of over 1,200 physicians and other providers. They represent all of the pediatric medical and surgical specialties – general pediatrics as well as family practice.

Seattle Children’s Quicklinks

On-line Servies for Patients and Families

WA DOH Oral Health Program

Oral Health for People with Special Needs & Educational Materials Oral Health Promotion Card and Brochure for Children with Special Needs are also available in Spanish.

Washington DOH Community Health & Division Programs List

Our programs and services help prevent illness and injury, promote healthy places to live and work, provide education to help people make good health decisions and ensure our state is prepared for emergencies.