Health resources

American Association on Intellectual and Developmental Disabilities (AAIDD)

Criteria for ID Now Available in Eight Additional Languages! - AAIDD is pleased to make available translations of the three-pronged definitional/diagnostic criteria for intellectual disability on its website. http://bit.ly/2WqaRVF

Autism Research at the National Institute of Child Health and Human Development (NICHD)

ASD is a complex developmental disorder that affects how a person behaves, interacts with others, communicates, and learns. NICHD is one of many federal agencies and NIH Institutes working to understand ASD. NICHD supports and conducts research on what causes autism, how best to detect signs of autism, how best to treat autism and its symptoms, and other topics.

Basic Health Information for WA

Washington State Health Care Authority

Batten Disease Support and Research Association

BDSRA has compiled a list of testing centers in the United States and several other countries. If you would like to share your diagnostic journey or support the organizations goals around better and faster diagnosis for Batten disease please reach out to us a info@bdsra.org.

Care Notebook Documents and Forms

Organizing your child’s health information not only helps you, but can help providers or other caregivers to better know and support your child. We spoke with parents to hear what they have learned about organizing all the paperwork, appointments, schedules and other information needed to care for their child.

CdLS Society

Cornelia de Lange Syndrome Foundation

Center for Children with Special Needs (CSHCN)

After 20 years serving families of children with special needs, due to a loss of state funding, the Center for Children with Special Needs has closed its doors effective September 30, 2018. During the coming months, many resources on CSHCN.org will become available on SeattleChildrens.org. It has been a pleasure serving you, getting to meet you, and helping you find resources for your child. Thank you.

Cerebral Palsy Guidance

Their website cover medical information, including symptoms and treatment, as well as daily living topics, including counseling, abuse, college/careers, bullying and more.

CHADD - Children and Adults with Attention-Deficit/Hyperactivity Disorder

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) creating and implementing programs and services in response to the needs of adults and families affected by ADHD through collaborative partnerships and advocacy, including training for parents and K-12 teachers, hosting educational webinars and workshops, being an informative clearinghouse for the latest evidence-based ADHD information, and providing information specialists to support the ADHD community.

Child Health Information and Resources

A Division of Healthy Childcare Consultants, Inc.

Child Welfare Parent Partner Mentoring Program

Child Welfare Parent Partner Mentoring Program

Dental Care

Website designed to link individuals with disabilities to dental professionals.

Emergency Dentist USA (Washington)

Specializes in Special Needs also Spanish resources

Emergency Evacuation Preparedness: Taking Responsibility for Your Safety

How might a disaster affect you? Could you make it on your own for at least three days? After a disaster, you may not have access to a medical facility or even a drugstore, so it’s crucial to plan for the resources you use regularly, and what you would do if those resources are limited or not available. Additional planning steps should include:

Health Manager

Look up Diseases & Conditions (Mayo Clinic)

Healthcare Services and Supports WA

Washington State Health Care Authority

NIH Website on Children and Medical Research

The safety of children remains the utmost priority for all NIH research studies.

Nutrition For Children With Special Health Care Needs in Washington State

This project is a collaboration between the Children with Special Health Care Needs Program in the Department of Health, and the Center on Human Development and Disability at the University of Washington in Seattle, WA.

Resources in Washington State

English, Spanish and Vietnamese (from Informing Families) Strategies to Support Real Lives: Connecting to Resources in WA State

Seattle Children’s Linkages Newsletter Online

Due to loss of funding from the Washington State Department of Health as of October 1, 2018, the Linkages newsletter will no longer be published. Please contact Beth.Crispin@seattlechildrens.org if you have any questions.

Seattle Children’s Medical Staff

The active medical staff at Seattle Children's Hospital is comprised of over 1,200 physicians and other providers. They represent all of the pediatric medical and surgical specialties – general pediatrics as well as family practice.

Seattle Children’s Quicklinks

On-line Servies for Patients and Families

United Cerebral Palsy (UCP)

UCP affiliates provide services and support on a community-by-community basis, serving the unique needs of people with disabilities in their region.

United Healthcare Children’s Foundation

Our mission is to improve children’s lives and help families gain access to the care they need through medical grants. Helping Kids. Changing Lives

Velo-Cardio-Facial Syndrome Educational Foundation, Inc.

22q11.2 Deletion syndrome or 22q (also referred to as Velocardiofacialsyndrome (VCFS), and/or DiGeorge syndrome) is a disorder caused by a small missing piece of the 22nd chromosome. This tiny missing portion of chromosome 22 can affect every system in the human body. 22q can be the cause of nearly 200 mild to serious health and developmental issues in children.

Violet Sees Free Glasses Program

WE can help you afford glasses for your child. Check out- https://www.violetsees.org/glasses Violet Sees Free Glasses Program CAN WE HELP YOU AFFORD GLASSES FOR YOUR CHILD? Please complete our Qualification Questionnaire to help us determine if your family would be a good fit for our program! You will hear back from us shortly after completing. IF YOU HAVE ANY QUESTIONS OR RUN INTO ANY PROBLEMS, PLEASE EMAIL JEN@VIOLETSEES.ORG

WA County Resource Lists

After 20 years serving families of children with special needs, due to a loss of state funding, the Center for Children with Special Needs has closed its doors effective September 30, 2018. During the coming months, many resources on CSHCN.org will become available on SeattleChildrens.org.

WA DOH Oral Health Program

Oral Health for People with Special Needs & Educational Materials Oral Health Promotion Card and Brochure for Children with Special Needs are also available in Spanish.

Washington DOH Community Health & Division Programs List

Our programs and services help prevent illness and injury, promote healthy places to live and work, provide education to help people make good health decisions and ensure our state is prepared for emergencies.

Western States Genetic Services Collaborative

The Western States Regional Genetics Services Collaborative is a federally funded multi-state project that seeks to coordinate and increase access to genetic services among our states and territory. The participating states and territory are: Alaska, California, Guam, Hawaii, Idaho, Oregon, and Washington.

Williams Syndrome Office

The diagnosis of Williams syndrome generally has two parts: 1) Clinical diagnosis based on a variety of characteristics. See the What is Williams syndrome section for details and 2) Medical/genetic test confirmation through a DNA test which will be performed on a small amount of blood from the child. There are two DNA tests that can determine if a person has Williams syndrome.