Self Advocates

Abuse Reporting Information for Vulnerable Adults

Advocacy ATLAS: Accessible Tools for Leadership and Advocacy Success – Produced by Genetics Alliance in collaboration with National Family Voice and Parent to Parent USA. It contains more than 250 resources and tools for individuals with special needs and their families.

American Association of People with Disabilities (AAPD) – The American Association of People with Disabilities is a convener, connector, and catalyst for change, increasing the political and economic power of people with disabilities.

Association for Children with Down Syndrome (ACDS) – ACDS programs deliver on our mission statement – to serve individuals with developmental disabilities throughout their lifetime. Our programs encompass three broad age categories: Early childhood and preschool years, 5 years plus, and adult years.

FAIR Documentary ProjectA multimedia project documenting the self-advocacy movement of people with developmental disabilities in Washington state.

Kids as Self-Advocates (KASA) – Supported by Family Voices, KASA is a national organization of young people with special needs.

PACER CENTERParent Advocacy Coalition for Educational Rights.

Self Advocates in Leadership (SAIL) – A statewide self-advocacy coalition focused on shaping public policies.

The Arc of the Peninsulaswas known as The Arc of Kitsap and Jefferson Counties

The Arc of the United States: Legislative and Action Center

The Arc of the United States: Media Center

Williams Syndrome – The diagnosis of Williams syndrome generally has two parts: 1) Clinical diagnosis based on a variety of characteristics. See the What is Williams syndrome section for details and 2) Medical/genetic test confirmation through a DNA test which will be performed on a small amount of blood from the child. There are two DNA tests that can determine if a person has Williams syndrome.