Parents

ADA Research Find a Dentist

 

Advocacy ATLAS: Accessible Tools for Leadership and Advocacy SuccessProduced by Genetics Alliance in collaboration with National Family Voice and Parent to Parent USA. It contains more than 250 resources and tools for individuals with special needs and their families.

 

Association for Children with Down Syndrome (ACDS) – ACDS programs deliver on our mission statement – to serve individuals with developmental disabilities throughout their lifetime. Our programs encompass three broad age categories: Early childhood and preschool years, 5 years plus, and adult years.

 

Attention Deficit Disorder Association(ADDA) Information, resources, articles, services, support groups and more for individuals with attention deficit disorder.

 

Autism Internet Modules (AIM)AIM is designed to provide high-quality information and professional development for anyone who supports, instructs, works with, or lives with someone with autism.

 

Autism Outreach ProjectA statewide lending library and resource-linked website or resources for educators and parents with special education needs. Some of the materials are available in Korean and Spanish languages.

 

Autism Project: WA Department of HealthAutism Spectrum Disorders are a group of developmental disabilities that can cause significant challenges in communication, behavior and social interactions. Typically appearing within the first three years of life, autism affects each individual differently. Early screening, diagnosis, and services are essential to get the best results for children with autism.

 

Autism Society of Washington StateThe vision of the Autism Society of Washington is that every person with autism has the opportunity to achieve his/her fullest potential and be fully included in communities across Washington State.

 

Autism Speaks: Autism & Your FamilyFifteen Tips for Your Family – As a result of her work with many families who deal so gracefully with the challenges of autism, Family Therapist, Kathryn Smerling, Ph.D., offers these five tips for parents, five for siblings and five for extended family members

 

Autism Speaks: School Community Tool KitA tool kit to assist members of the school community in understanding and supporting students with autism.

 

Autism Spectrum ConnectionFor individuals or family members wanting to learn more about autism or Asperger syndrome

 

Autism Task Force 2016 Guidebook

 

Basic Health Information for WAWashington State Health Care Authority

 

Bates Technical College Paraeducator Training

 

Beginning the Conversation: From Children Now and the Kaiser Family FoundationTalking with Kids about Tough Issues

 

Booklets about prenatal diagnosis of a genetic condition – Letter case booklets for expectant parents who’ve received a prenatal diagnosis of a genetic condition

 

Bookshare: Accessible Books and Periodicals for Readers with Print DisabilitiesBookshare makes reading easier. People with dyslexia, blindness, cerebral palsy, and other reading barriers can customize their experience to suit their learning style and find virtually any book they need for school, work, or the joy of reading.

 

CdLS SocietyThe Cornelia de Lange Syndrome (CdLS) Foundation provides a host of services for anyone touched by this little-known genetic syndrome and other isolating conditions.

 

Center for Change in Transition Services CCTS is a state – and contract – funded project housed in the College of Education at Seattle University.

 

Center for Parent Information and Resources (NICHCY)Much of the rich library of materials and publications that NICHCY produced over the years has a new home here, on this website of the Center for Parent Information and Resources (CPIR).

 

CHADD – Children and Adults with Attention-Deficit/Hyperactivity DisorderChildren and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) creating and implementing programs and services in response to the needs of adults and families affected by ADHD through collaborative partnerships and advocacy, including training for parents and K-12 teachers, hosting educational webinars and workshops, being an informative clearinghouse for the latest evidence-based ADHD information, and providing information specialists to support the ADHD community.

 

CHADD – SpanishChildren and Adults with Attention-Deficit/Hyperactivity Disorder

 

Child Health Information and ResourcesA Division of Healthy Childcare Consultants, Inc.

 

Children’s Health Insurance Program (CHIP)

 

 
 
 

More sibling support information: www.siblingsupport.org

Compassionate Schools: The Heart of Learning and Teaching

CSHCN Coordinator List

DEL Connect

Members of the Early Learning Advisory Council (ELAC) gathered for their final meeting under the Department of Early Learning (DEL) earlier this month. The council discussed topics ranging from the new early learning facilities grant program to the July 1, 2018 transition to the Department of Children, Youth, and Families (DCYF).

DEL Facebook Page

Washington Department of Children, Youth and Families

DEL Kindergarten Readiness Pilot

Washington Kindergarten Inventory of Developing Skills (WaKIDS) Alert: Beginning July 1, 2018, the Department of Early Learning will become the Department of Children, Youth, and Families (DCYF). After June 30, 2018, this website will no longer be updated. For the latest information on early learning, visit the DCYF website at www.dcyf.wa.gov.

Dental Care Guidance for Patients with Special Needs

Disability Resource Community

The Disability Resource Community is a platform designed for people with disabilities, their family members and caregivers to ask questions, share resources and build community around the things that matter most.

Disability.gov

Connecting the Disability Community to Information and Opportunities.

Disaster Preparedness for People with Disabilities

FEMA-For the millions of Americans who have physical, medical, sensory or cognitive disabilities, emergencies such as fires, floods and acts of terrorism present a real challenge. The same challenge also applies to the elderly and other special needs populations. This booklet will help people with disabilities prepare and emergency plan to protect themselves, family, friends, personal care assistant and others in the support network in the event of an emergency. Post the plan where everyone will see it, keep a copy with you and make sure everyone involved in your plan has a copy.

Discussing Down Syndrome: A Physician’s Guide

From the National Down Syndrome Congress.

Down Syndrome Affiliates in Action

DSHS DDA Publications

Order Printed Books, DVDs and Videos Go to the Department of Printing’s Myfulfillment.wa.gov They are always prepackaged in set quantities of books or DVDs for student teaching.

Eligibility for Developmental Disabilities Services

Emergency Preparedness Resources for Deaf, Blind and Limited Sight Populations

From the NE Texas Public Health District

Epilepsy Foundation

Epilepsy Foundation Northwest

Exceptional Parent

Families Together

Family Resource Center: Providing education, information and support (Spanish)

Family Voices of Washington State

Fathers Network

A Powerful Voice for Fathers and Families of Children with Special Health Care Needs. We do our work by connecting men with each other and with resources and information, by training men to tell their story and advocate for change and by working to promote inclusion.

FEAT of Washington (Families for Effective Autism Treatment)

Free Tool to Know and Share Family Health History

Going to College

A resource for teens with disabilities.

Going to Work: A Guide to SS Benefits

Growth and Development Ages 13 to 17 What Parents Need to Know

Advocates for Youth

Health Manager

Look up Diseases & Conditions (Mayo Clinic)

Healthcare Services and Supports WA

Washington State Health Care Authority

Individuals with Disabilities Education Act (IDEA)

Welcome to the U.S. Department of Education’s Individuals with Disabilities Education Act (IDEA) website, which brings together IDEA information and resources from the Department and our grantees.

Infant and Early Childhood

The former Children’s Administration is now part of the Department of Children, Youth, and Families. The former Division of Behavioral Health and Recovery is now part of the Health Care Authority.

Infant and Early Childhood Conference Registration

Infant Toddler Early Intervention Program (ITEIP) System Improvement Project

The former Children’s Administration is now part of the Department of Children, Youth, and Families and the former Division of Behavioral Health and Recovery is now part of the Health Care Authority. Content that previously was bookmarked through the Department of Social and Health Services website no longer is available. July 1, 2018, the Department of Early Learning became the Department of Children, Youth, and Families (DCYF).

Information About the Appeal Process if denied SS Benefits

Information for New and Expectant Parents

From the National Down Syndrome Congress

Information on How Washington State Provides DD Services

Developmental Disabilities Administration Services & Programs

Informing Families (Spanish)

Informing Families, Building Trust

A partnership for communication on developmental disabilities issues in Washington State

InsureKidsNow.gov

Interactive Collaborative Autism Network (ICAN)

Journal ‘Pediatrics’ Policy Statement on Emergency Info Forms and Preparedness

Kids Health

Learning Disabilities Association of Washington

Medical Home

My Next Steps: A Parent’s Guide to Understanding Autism

UW Autism Center

National Center on Birth Defects and Developmental Disabilities

CDC Website

Neurodevelopmental Centers of Washington

NIH Website on Children and Medical Research

The safety of children remains the utmost priority for all NIH research studies.

Nutrition Training Grant CHDD

Office of the Education Ombudsman

In 2006, the Washington State Legislature passed House Bill 3127 to establish the Office of the Education Ombuds (OEO) to reduce the opportunity gap by supporting families, students, educators, and communities in understanding the public K-12 education system and resolving concerns collaboratively. The legislature placed us within the Governor’s Office to ensure our independence from the public education system.

OSPI Conferences, Trainings & Professional Development

This page is for training and professional development opportunities.

OSPI Publications

The Special Education Resource Library is intended to provide guidance and professional development resources on behalf of students with disabilities.

Outdoors For All

Our vision that people of all abilities recreate wherever and whenever they choose.

Parent Help 123: Benefit and resource finder

Parent Support_Ethnic Outreach Spanish

March 2019

Parent to Parent of the United States

Resources About Sexuality & Children/Youth with Disabilities and Chronic Illnesses

From the University of Michigan.

Resources for Grandparents & Other Relatives Raising Children

Kinship Care – Are you a grandparent or other family member raising a relative’s child? You are not alone. More than 47,000 individuals in Washington State are caring for one or more relative children (out of a total of 51,000). The financial, legal, and emotional issues of raising a relative’s child can be challenging. Services and support when raising a relative’s child can be a lifesaver.

Resources in Washington State

English, Spanish and Vietnamese (from Informing Families) Strategies to Support Real Lives: Connecting to Resources in WA State

Sacred Heart Children’s Hospital Nutrition

Scholarships for Persons with Disabilities That Help Subsidize Education Expenses

Seattle Children’s Autism 200 Series

90-minute classes

Seattle Children’s Continuing Education

Seattle Children’s Linkages Newsletter Online

Due to loss of funding from the Washington State Department of Health as of October 1, 2018, the Linkages newsletter will no longer be published. Please contact Beth.Crispin@seattlechildrens.org if you have any questions.

Seattle Children’s Medical Staff

The active medical staff at Seattle Children’s Hospital is comprised of over 1,200 physicians and other providers. They represent all of the pediatric medical and surgical specialties – general pediatrics as well as family practice.

Seattle Children’s Quicklinks

On-line Servies for Patients and Families

Sex Education for Parents of Children on the Autism Spectrum

Manual.

Sexuality and Autism: Sex Education for Children and Teens with Autism

Sexuality and Autism: TEACCH Report

Sex Education for Individuals with Autism – Matching Programmes to levels of functioning

Sibling Support Project

Social Security Administration: Benefits for Children

Social Security Benefits For People With Disabilities

Special Education Technology Center (SETC)

Spina Bifida Association of Washington State

SS/SSI Debit Card

Starting Point: Resource Booklet

STOMP: Specialized Training of Military Parents

Provides families with federal information to gain a a better understanding of how to navigate through educational and medical systems when they have a child who has exceptional/special needs.

Supporting and Protecting Children, Youth and Families

July 1, 2018, the Department of Early Learning (DEL) became the Department of Children, Youth, and Families (DCYF).

Techsoup

The Circles Curriculum

This program helps students “see” social distance and explains levels of intimacy and how those levels can change over time.

The Puzzle of Autism

Guide designed for education personnel working with students with ASD.

The Special Education Support Center

The Washington Assistive Technology Foundation (WATF)

Through the Looking Glass

National Resource Center for Parents with Disabilities, is a community based nonprofit organization.

Tips on Beginning a New School Year for Children with Autism

Tips on Talking With Your Young Child About Sex

American Academy of Pediatrics and HealthyChildren.org

Transition Notebook (Adolescent Health Transition Project)

United Cerebral Palsy (UCP)

UCP affiliates provide services and support on a community-by-community basis, serving the unique needs of people with disabilities in their region.

United Healthcare Children’s Foundation

Our mission is to improve children’s lives and help families gain access to the care they need through medical grants. Helping Kids. Changing Lives

University of Washington Autism Center

UW Autism Center Early Start Denver Model Workshop (ESDM)

Valued Lives: Inspired Living

Valued Lives’ passion is to empower vulnerable people to have real choice, real control and a genuine voice in the design, planning and delivery of their own supports and services.

Velo-Cardio-Facial Syndrome Educational Foundation, Inc.

22q11.2 Deletion syndrome or 22q (also referred to as Velocardiofacialsyndrome (VCFS), and/or DiGeorge syndrome) is a disorder caused by a small missing piece of the 22nd chromosome. This tiny missing portion of chromosome 22 can affect every system in the human body. 22q can be the cause of nearly 200 mild to serious health and developmental issues in children.

Violet Sees Free Glasses Program

WE can help you afford glasses for your child. Check out- https://www.violetsees.org/glasses Violet Sees Free Glasses Program CAN WE HELP YOU AFFORD GLASSES FOR YOUR CHILD? Please complete our Qualification Questionnaire to help us determine if your family would be a good fit for our program! You will hear back from us shortly after completing. IF YOU HAVE ANY QUESTIONS OR RUN INTO ANY PROBLEMS, PLEASE EMAIL JEN@VIOLETSEES.ORG

WA DOH Oral Health Program

Oral Health for People with Special Needs & Educational Materials Oral Health Promotion Card and Brochure for Children with Special Needs are also available in Spanish.

Walla Walla Transition Checklist

(created by Walla Walla P2P)

Washington Association for the Education of Young Children (WAEYC)

Washington Department of Social and Health Services (DSHS)

As a Department we are tied together by a single mission: to transform lives. Each administration within DSHS has a refined focus on this mission.

Washington DOH Community Health & Division Programs List

Our programs and services help prevent illness and injury, promote healthy places to live and work, provide education to help people make good health decisions and ensure our state is prepared for emergencies.

Washington Education Association (WEA)

Washington Educational Service Districts (ESDs)

Washington Initiative for Supported Employment (WISE)

Washington Office of Superintendent of Public Instruction (OSPI)

Washington PAVE

Washington Sensory Disabilities Services

Washington State Child Care Resource & Referral Network

Serving Washington since 1989

Washington State Department of Early Learning (DEL)

July 1, 2018, the Department of Early Learning became the Department of Children, Youth, and Families (DCYF). June 30, 2018, this website will no longer be updated. For the latest information on early learning, visit the DCYF website at www.dcyf.wa.gov.

Washington State DSHS Developmental Disabilities Administration

Washington State Life Opportunities Trust (Endowment Trust Fund)

Washington State School for the Blind

Washington Talking Book and Braille Library

Washington Yellow Pages for Kids with Disabilities

Welfare Reform and SSI Childhood Disability

What’s Next?

A Vision of the Future: The key is being prepared

WithinReach (Formerly Healthy Mothers, Healthy Babies)

Yakima County Parent to Parent Uspanol

Updated 2018