Resources

The Arc of Washington State maintains this Resource Guide to enhance public access to information about services and resources available to residents in the State of Washington.

Non-profit and state and federal agencies, and a comprehensive list of documents that support intellectual and developmental disability issues will be listed in this Resource Guide.

The inclusion of any organization, agency or service in this resource guide does not imply or constitute an endorsement or recommendation, nor does exclusion imply disapproval.

The Arc of Washington State neither guarantees nor makes any representation as the accuracy or completeness of the information contained in its Resource Guide or external links.

 

Find alphabetically by name-click on corresponding letter.

A B C D E F G H I J
K L M N O P Q R S T
U V W X Y Z

A

A Sense of Fulfillment-A New and Different Sense of Purpose

Abuse and Neglect

Abuse Reporting Information for Vulnerable Adults

Academic Accommodations for Students – As the number of individuals being diagnosed with learning disabilities has increased, so have the understanding and utilization of academic and technological strategies for accommodation. Achieving equal access through accommodations and universal design. Members of the largest group of students with disabilities have learning disabilities.

Acronyms in the Developmental Disability World

Action Network 2020 brochure

Action Network brochure (Spanish)

ADA Research Find a Dentist

Adaptive Star Mobility Inc. – Adaptive Star was founded in 2009 with the purpose of providing families with alternative indoor/outdoor mobility products.

ADDM – The Autism and Developmental Disabilities Monitoring Network

Adult Abuse, Neglect and Exploitation

Adult Sibling Toolkit

Advocacy ATLAS: Accessible Tools for Leadership and Advocacy Success

Advocacy Partnership Project Español

Advocacy Partnership Project 2020 brochure

American Association of People with Disabilities (AAPD) – The American Association of People with Disabilities is a convener, connector, and catalyst for change, increasing the political and economic power of people with disabilities.

American Association on Intellectual and Developmental Disabilities (AAIDD) – Criteria for ID Now Available in Eight Additional Languages! – AAIDD is pleased to make available translations of the three-pronged definitional/diagnostic criteria for intellectual disability on its website. http://bit.ly/2WqaRVF

Article from the Centralia Chronicle 4/10/12: “Coping With Autism”

Association for Children with Down Syndrome (ACDS) – ACDS programs deliver on our mission statement – to serve individuals with developmental disabilities throughout their lifetime. Our programs encompass three broad age categories: Early childhood and preschool years, 5 years plus, and adult years.

Attention Deficit Disorder Association

Autism Internet Modules (AIM)

Autism Outreach Project

Autism Project – WA Department of Health

Autism Research at the National Institute of Child Health and Human Development (NICHD)

Autism Society of America

Autism Society of Washington State

Autism Speaks: Autism & Your Family

Autism Speaks: School Community Tool Kit

Autism Spectrum Connection

Autism Task Force Guidebook

B

Basic Health Information for WA

Bates Technical College Paraeducator Training

Batten Disease Support and Research Association

Beginning the Conversation: From Children Now and the Kaiser Family Foundation

Being An Effective Advocate 2020

Being an Effective Advocate Español

Benefits Eligibility Screening Tool

Birth Injury Guide

Booklets about prenatal diagnosis of a genetic conditBookshare: Accessible Books and Periodicals for Readers with Print Disabilities

Brain Injury Association of America

Brain Injury Association of Washington

C

CdLS Society

Center for Change in Transition Services

Center for Children with Special Needs (now Seattle’s Children)

Center for Parent Information and Resources (NICHCY)

Center on Human Development and Disability (UW)

Centers for Medicare and Medicaid Services

CFP – Cerebal Palsy Foundation

CHADD – Children and Adults with Attention-Deficit/Hyperactivity Disorder

CHADD – Spanish

Checklist for Transitioning to Adult Health Care

Child Health Information and Resources

Children with Special Health Care Needs (CSHCN)

Children with Special Needs WA Calendar of Events

Children’s Alliance

Children’s Health Insurance Program (CHIP)

Columbia Legal Services

Compassionate Schools: The Heart of Learning and Teaching

Council of Exceptional Children (CEC)

Creating a Home Where Your Child Can Thrive with a Disability

CSHCN Coordinator List

CSHCN: Teen Transition to Adult Healthcare

D

DEL Connect

DEL Facebook Page

Dental Care

Dental Care Guidance for Patients with Special Needs

Department of Education, Office of Special Education and Rehabilitative Services

Department of Labor (DOL)

Department of Labor – Disability Resources

Developmental Disabilities Administration Fact Sheets

Developmental Disabilities Council (DDC)

Disability and Health Emergency Preparedness (CDC)

Disability Government Information

Disability History Museum/Library and Education

Disability Rights Washington

Disaster Preparedness For Children With Special Nutrition Needs

Disaster Preparedness for People with Disabilities

Discussing Down Syndrome: A Physician’s Guide

Dogs for Better Lives

Down Syndrome Affiliates in Action

DSHS DDA Publications

 

E

Early Support for Infants and Toddlers

Easter Seals Society of Washington

Eligibility for Developmental Disabilities Services

Emergency Dentist USA (Washington)

Emergency Evacuation Preparedness: Taking Responsibility for Your Safety

Emergency Preparedness – Preparing Your Bedroom

Emergency Preparedness Resources for Deaf, Blind and Limited Sight Populations

Epilepsy Foundation

Epilepsy Foundation Northwest

Epilepsy Support Groups and Organizations

Exceptional Parent

F

Facts About the HCBS 5 New Waviers

Facts About the HCBS 5 New Waviers (Spanish)

FAIR Documentary Project

Families and Advocates Partnership for Education (FAPE)

Families Together

Families USA

Family Community Connections Guidebook

Family Voices of Washington State

Fathers Network

FEAT of Washington (Families for Effective Autism Treatment)

Federal Benefits and State Services

Federal Benefits and State Services – Spanish

Fetal Alcohol Syndrome Family Resource Institute

Fragile X Foundation

Free Tool to Know and Share Family Health History

G

Global Autism Collaboration

Going to College

Going to Work: A Guide to SS Benefits

Guardianship booklet

Guardianship booklet Spanish

Guía de Cuidado Dental para Pacientes con Síndrome de Down

Guide To Home Remodeling For People With Disabilities

H

Health Insurance Consumer Hotline

Health Manager (Mayo Clinic)

Healthfinder Espanol

Help Loved Ones With Sensory Overload

HHS – U.S. Department of Health and Human Services

Hot Tips 2020 booklet

Hot Tips booklet Español

HTF – Housing Trust Fund

HUD – Housing and Urban Development

I

Individuals with Disabilities Education Act (IDEA)

Infant and Early Childhood

Infant and Early Childhood Conference Registration

Infant Toddler Early Intervention Program (ITEIP) System Improvement Project – The former Children’s Administration is now part of the Department of Children, Youth, and Families and the former Division of Behavioral Health and Recovery is now part of the Health Care Authority. Content that previously was bookmarked through the Department of Social and Health Services website no longer is available.

Influencing the Rule-Making Process In Washington State

Information About the Appeal Process if denied SS Benefits

Information for New and Expectant Parents – From the National Down Syndrome Congress

Informing Families Building Trust (Spanish)

Informing Families, Building Trust

InsureKidsNow.gov

Interactive Collaborative Autism Network (ICAN)

Invest in Life: Growing Your Options – ETF Information Sheet

Invest in Life: Growing Your Options – ETF Information Sheet – Spanish

J

JCAHO: Joint Commission on Accreditation for Healthcare Organizations

JLARC Reports

Journal ‘Pediatrics’ Policy Statement on Emergency Info Forms and Preparedness

K

Keys for a Successful Advocacy Day

Keys for a Successful Advocacy Day 2019 Español

Kids as Self-Advocates (KASA)

Kids Health

Kids Quest on Disabilities and Health

L

LD Online

Learning Disabilities Association of America

Learning Disabilities Association of Washington

LifeSPAN Network – LifeSPAN’s mission is to support families who have a relative with disabilities plan a safe, secure and quality future for their relatives, beyond the lifetime of the parents.

M

March of Dimes

Medical Home

Military Family Member Program – EFMP – Support for military families with the EFMP program help ensure all active duty families have medical, mental health, and special education needs met.

Muscular Dystrophy Association (MDA)

My Next Steps: A Parent’s Guide to Understanding Autism

N

National Academy of Sciences

National Alliance for the Mentally Ill

National Association for Down Syndrome

National Center on Birth Defects and Developmental Disabilities

National Center on Educational Outcomes (NCEO)

National Center on Secondary Education and Transition

National Center on Workforce and Disability/Adult

National Disability Rights Network

National Dissemination Center for Children with Disabilities

National Housing Trust Fund

National Institute for Urban School Improvement

National Institute of Child Health and Human Development (NICHD)

National Institutes of Mental Health

National Organization for Rare Disorders, Inc.

Neurodevelopmental Centers of Washington

New IFS Waiver DDA documents

NIH Website on Children and Medical Research

Northwest Justice Project – Visit https://www.washingtonlawhelp.org/ for free legal publications and self-help packets. Also in alternate languages.

Nutrition For Children With Special Health Care Needs in Washington State

Nutrition Interventions for Children With Special Health Care Needs – DOH Publication

Nutrition Training Grant CHDD

O

Office for Victims of Crime

Office of Disability Employment Policy (ODEP)

Office of Public Guardianship

Office of the Education Ombudsman – In 2006, the Washington State Legislature passed House Bill 3127 to establish the Office of the Education Ombuds (OEO) to reduce the opportunity gap by supporting families, students, educators, and communities in understanding the public K-12 education system and resolving concerns collaboratively. The legislature placed us within the Governor’s Office to ensure our independence from the public education system.

Office of the Superintendent of Public Instruction (OSPI)

Office of the Surgeon General

OSPI Conferences, Trainings & Professional Development

Outdoors For All

P

P2P Virtual Support Groups King Co 2018

P2P USA Road Map

PACER CENTER

Paraeducator Training and Testing On-line Course

Parent Coalitions

Parent Help 123: Benefit and resource finder

Parent to Parent USA

PAVE

People First of Washington

Pierce County Coalition for Developmental Disabilities

Planning for Transition to Adulthood for Youth with Intellectual and Developmental Disabilities-

Prader-Willi Syndrome Association

Prepare for your Child’s Financial Future

Preparing for Disaster for People with Disabilities and other Special Needs

Projects of National Significance

Publication Request Form

Q

 

R

Rebuilding Together

Refugee Health (Office of Global Health Affairs)

Representing Yourself at an Administrative Hearing

Resources About Sexuality & Children/Youth with Disabilities and Chronic Illnesses

Resources for Grandparents & Other Relatives Raising Children

Resources in Washington State

Rett Syndrome

S

Sacred Heart Children’s Hospital Nutrition

SAIL

Scholarships for Persons with Disabilities That Help Subsidize Education Expenses

Seattle Children’s Autism 200 Series

Seattle Children’s Continuing Education

Seattle Children’s Medical Staff

Seattle Children’s Quicklinks

Seattle Children’s Center for Children with Special Needs

Self Advocates in Leadership (SAIL)

Self-Advocates Becoming Empowered (SABE)

Sesame Street and Autism

Sex Education for Parents of Children on the Autism Spectrum

Sexuality and Autism: Sex Education for Children and Teens with Autism

Sexuality and Autism: TEACCH Report

Sibling Support Project

Smart Home Accommodations

Social Security Administration: Benefits for Children with Disabilities

Social Security Benefits For People With Disabilities

Social Security Online Ticket to Work – Contact the Help Line at 1-866-968-7842 or 1-866-833-2967 (TTY) M-F 8 a.m. – 8 p.m. ET, or Send Us an Email Message support@choosework.ssa.gov

Speak Up: A Guide to Self-Advocacy

Special Education Technology Center (SETC)

Special Needs Project

Special Olympics

Special Olympics of Washington State

Spina Bifida Association of America

Spina Bifida Association of Washington State

SS Benefits Eligibility Screening Tool

SS/SSI Debit Card

SSA BEST Benefits

Starting Point: Resource Booklet

STOMP: Specialized Training of Military Parents – Provides families with federal information to gain a a better understanding of how to navigate through educational and medical systems when they have a child who has exceptional/special needs.

Supporting and Protecting Children, Youth and Families – July 1, 2018, the Department of Early Learning (DEL) became the Department of Children, Youth, and Families (DCYF).

T

Talk Autism

TASH

Teacher Resources

Tech Tips: Apps 101 – for Androids

Tech Tips: Apps 101 – For Apple

Technology Resources For Individuals with Disabilities

Techsoup

The Arc of Cowlitz Valley

The Arc of Grays Harbor

The Arc of King County

The Arc of Snohomish County

The Arc of Spokane County

The Arc of the Peninsulas

The Arc of the United States

The Arc of the United States: Legislative and Action Center

The Arc of the United States: Media Center

The Arc of Tri-Cities

The Arc of WA brochure

The Arc of WA brochure – Spanish

The Arc of Washington’s Membership Form

The Arc of Whatcom County

The Circles Curriculum

The First Signs

The History of State and National Activities, Events and Policies – booklet

The History of State and National Activities, Events and Policies – Spanish booklet

The Institute on Community Integration

The Puzzle of Autism

The Research and Training Center on Community Living

The Special Education Support Center

The Washington Assistive Technology Foundation (WATF)

The White House

Through the Looking Glass

Tips on Beginning a New School Year for Children with Autism

Tips on Talking With Your Young Child About Sex

Transition Notebook (Adolescent Health Transition Project)

Transition to Adult Life: A Shared Responsibility

Transitioning to Adult Health Care Poster

U

United Cerebral Palsy (UCP)

United Healthcare Children’s Foundation

United States House of Representatives

United States Senate

University of Washington Autism Center

University of Washington/Department of Rehabilitation Medicine

US Office of Personnel Management

UW Autism Center Early Start Denver Model Workshop (ESDM)

V

Valued Lives: Inspired Living

Velo-Cardio-Facial Syndrome Educational Foundation, Inc. – 22q11.2 Deletion syndrome or 22q (also referred to as Velocardiofacialsyndrome (VCFS), and/or DiGeorge syndrome) is a disorder caused by a small missing piece of the 22nd chromosome. This tiny missing portion of chromosome 22 can affect every system in the human body. 22q can be the cause of nearly 200 mild to serious health and developmental issues in children.

Violet Sees Free Glasses Program – WE can help you afford glasses for your child. Check out- https://www.violetsees.org/glasses Violet Sees Free Glasses Program CAN WE HELP YOU AFFORD GLASSES FOR YOUR CHILD? Please complete our Qualification Questionnaire to help us determine if your family would be a good fit for our program! You will hear back from us shortly after completing. If you have any questions or run into any problems, please email: JEN@VIOLETSEES.ORG

W

WA DOH Oral Health Program

WA State Parent Coalitions

Washington Association for the Education of Young Children (WAEYC)

Washington Department of Social and Health Services (DSHS)

Washington Education Association (WEA)

Washington Educational Service Districts (ESDs)

Washington Human Rights Commission (HRC)

Washington Initiative for Supported Employment (WISE)

Washington Office of Superintendent of Public Instruction (OSPI)

Washington PAVE

Washington Sensory Disabilities Services

Washington State Child Care Resource & Referral Network

Washington State Division of Vocational Rehabilitation (DVR)

Washington State DSHS Developmental Disabilities Administration

Washington State Hands and Voices

Washington State Legislative Evaluation and Accountability Program (LEAP) Committee

Washington State Legislature

Washington State Life Opportunities Trust (Endowment Trust Fund)

Washington State Parent Coalitions

Washington State School for the Blind

Washington State Special Education Coalition (WSSEC)

Washington Talking Book and Braille Library

Washington Yellow Pages for Kids with Disabilities

Welfare Reform and SSI Childhood Disability

Western States Genetic Services Collaborative

What the Social Security Office has to say about Special Needs Trusts

What’s Next? – A Vision of the Future Español booklet

What’s Next? – A Vision of the Future booklet

Williams Syndrome Office

Wings for Autism

Winning In College: A Guide For Students With Disabilities

WithinReach (Formerly Healthy Mothers, Healthy Babies)

X

Y

Your Idea Can Be a State Law

Your Idea Can Be a State Law 2018 Español

Z

 

Find by subject

Abuse

Advocacy

Autism

Diagnosis

Disaster preparedness

DSHS – DDA Developmental Disabilities Administration

Children and Education

Employment and Transition

Federal and Social Security

Health

Parent support

Publications

Recreation and Transportation

Sex education

Siblings

Spanish

Washington State