Resources

A comprehensive list of documents and websites that support intellectual and developmental disability issues.

Find alphabetically by name-click on corresponding letter.

A B C D E F G H I J
K L M N O P Q R S T
U V W X Y Z

A

A Sense of Fulfillment-A New and Different Sense of Purpose

A Troubling Tale

Abuse and Neglect

Abuse Reporting Information for Vulnerable Adults

Academic Accommodations for Students – As the number of individuals being diagnosed with learning disabilities has increased, so have the understanding and utilization of academic and technological strategies for accommodation. Achieving equal access through accommodations and universal design. Members of the largest group of students with disabilities have learning disabilities.

Acronyms in the Developmental Disability World

Action Network 2020 brochure

Action Network brochure (Spanish)

Active Listening Activities

ADA Research Find a Dentist

Adaptive Star Mobility Inc. – Adaptive Star was founded in 2009 with the purpose of providing families with alternative indoor/outdoor mobility products.

ADDM – The Autism and Developmental Disabilities Monitoring Network

ADDM autism

Adult Abuse, Neglect and Exploitation

Adult Sibling Toolkit:

Advocacy ATLAS: Accessible Tools for Leadership and Advocacy Success

Advocacy Partnership Project Español

Advocacy Partnership Project 2020 brochure

American Association of People with Disabilities (AAPD) – The American Association of People with Disabilities is a convener, connector, and catalyst for change, increasing the political and economic power of people with disabilities.

American Association on Intellectual and Developmental Disabilities (AAIDD) – Criteria for ID Now Available in Eight Additional Languages! – AAIDD is pleased to make available translations of the three-pronged definitional/diagnostic criteria for intellectual disability on its website. http://bit.ly/2WqaRVF

Are you interested in becoming a Sibshop Facilitator?

Article from the Centralia Chronicle 4/10/12: “Coping With Autism”

Association for Children with Down Syndrome (ACDS) – ACDS programs deliver on our mission statement – to serve individuals with developmental disabilities throughout their lifetime. Our programs encompass three broad age categories: Early childhood and preschool years, 5 years plus, and adult years.

Attention Deficit Disorder Association

Attributes (Qualities) of a Good Parent to Parent Coordinator

Autism Fact Sheet

Autism Internet Modules (AIM)

Autism Outreach Project

Autism Project – WA Department of Health

Autism Research at the National Institute of Child Health and Human Development (NICHD)

Autism Society of America

Autism Society of Washington State

Autism Speaks: Autism & Your Family

Autism Speaks: School Community Tool Kit

Autism Spectrum Connection

Autism Task Force Guidebook

B

Basic Health Information for WA

Bates Technical College Paraeducator Training

Batten Disease Support and Research Association

Beginning the Conversation: From Children Now and the Kaiser Family Foundation

Being An Effective Advocate 2020

Being an Effective Advocate Español

Benefits Eligibility Screening Tool

Birth Injury Guide

Birth-Defects-Recommendations-for-P2P-support

Booklets about prenatal diagnosis of a genetic conditBookshare: Accessible Books and Periodicals for Readers with Print Disabilities

Brain Injury Association of America

Brain Injury Association of Washington

C

Capitol Map

CCSS

CdLS Society

CEA agenda

Center for Change in Transition Services

Center for Children with Special Needs (now Seattle’s Children)

Center for Parent Information and Resources (NICHCY)

Center on Human Development and Disability (UW)

Centers for Medicare and Medicaid Services

Cerebral Palsy Guide

CHADD – Children and Adults with Attention-Deficit/Hyperactivity Disorder

CHADD – Spanish

Charting the Life Course: Tool for Developing a Vision – Family

Charting the Lifecourse Family Workshop – Creating a Whole Life

charts 2015 funding

Charts cover

Checklist for Transitioning to Adult Health Care

Child Health Information and Resources

Child Welfare 2010

Child Welfare Parent Partner Mentoring Program

Children and Adults with Developmental Disabilities

Children with Special Health Care Needs (CSHCN)

Children with Special Needs WA Calendar of Events

Children’s Alliance

Children’s Health Insurance Program (CHIP)

Children’s Mental Health Settlement

Circle of Security Parenting

Clark County

Clients with NO PAID SERVICE By County

Close caption

CMS Lakeland 2014 report

CMS Lakeland review

CMS Report – Lakeland Village – January 22, 2015

CMS Report – Lakeland Village – January 27, 2015

Colton’s Crew

Columbia Legal Services

Committee Hearings

Community Crisis Stabilization Services

Community Employment Alliance

Community Residential (Revised)

Community Residential Capacity (As of 1-18-11)

Community Residential Services Options

Companion Homes

Compassionate Schools: The Heart of Learning and Teaching

Council of Exceptional Children (CEC)

Creating a Home Where Your Child Can Thrive with a Disability

CRSA agenda

CRSA fact sheet

CSHCN Coordinator List

CSHCN: Teen Transition to Adult Healthcare

D

DDA Waiver Services and Contracts (New IFS) powerpoint

DDC Agenda

DDD Client Death in Group Home

Deaths

Deaths by Residence Type

DEL Connect

DEL Facebook Page

Dental Care

Dental Care Guidance for Patients with Special Needs

Department of Education, Office of Special Education and Rehabilitative Services

Department of Labor (DOL)

Department of Labor – Disability Resources

Descriptions of Violations 1-22-15

Developmental Disabilities Administration Fact Sheets

Developmental Disabilities Council (DDC)

Disability and Health Emergency Preparedness (CDC)

Disability Government Information

Disability History Museum/Library and Education

Disability Information and Referral Brochure

Disability Rights Washington

Disaster Preparedness For Children With Special Nutrition Needs

Disaster Preparedness for People with Disabilities

Discussing Down Syndrome: A Physician’s Guide

Don’t Cut Our Lifeline rally

Down Syndrome Affiliates in Action

DSHS DDA Publications

DSHS Secretary Susan Dreyfus Resigning

E

Early Support for Infants and Toddlers

Easter Seals Society of Washington

Economist Telomeres – Stress and Aging

Eligibility for Developmental Disabilities Services

Email regarding Loss of state funding

Emergency Dentist USA (Washington)

Emergency Evacuation Preparedness: Taking Responsibility for Your Safety

Emergency Preparedness – Preparing Your Bedroom

Emergency Preparedness Resources for Deaf, Blind and Limited Sight Populations

Employment and Day Fact Sheet

employment charts

Employment Demographics

Employment pages

employment pages 2015

Empowering Choice

Endangered Missing Persons Advisory

Endorsed Practices for Parent to Parent Support

Enhanced Respite Services

Enhancing background Checks

Epilepsy Foundation

Epilepsy Foundation Northwest

Epilepsy Support Groups and Organizations

Equity

Exceptional Parent

F

Facts About the HCBS 5 New Waviers

Facts About the HCBS 5 New Waviers (Spanish)

FAIR Documentary Project

Families and Advocates Partnership for Education (FAPE)

Families Together

Families USA

Family Community Connections Guidebook

Family Resource Center: Providing education, information and support (English)

Family Resource Center: Providing education, information and support (Spanish)

Family Support Safety Net

Family Voices of Washington State

Fathers Network

FEAT of Washington (Families for Effective Autism Treatment)

Federal Benefits and State Services

Federal Benefits and State Services – Spanish

Fetal Alcohol Syndrome Family Resource Institute

FHMC follow up

Final 2013 budget

Final 2015 Budget

Final Report UC Berkeley 2009 Evaluation of Contra Costa Parent Partners

FINDS

First Responder Training

Five Protective Factors

Fragile X Foundation

Free Tool to Know and Share Family Health History

Frequently Asked Questions: Proposed Closures and Transfer of Residents

G

GA On-Line Support Parent Training

Getting to Green

Getting Your Support Group Up and Running

Global Autism Collaboration

Going to College

Going to Work: A Guide to SS Benefits

Gov Gregoire budget 2013

Governor’s Letter – State Budget At A Glance

Grants for Wheelchair Lifts/Ramps

Group Facilitation Coordinator Panel

Guardianship booklet

Guardianship booklet Spanish

Guardianship Reform

Guía de Cuidado Dental para Pacientes con Síndrome de Down

Guide To Home Remodeling For People With Disabilities

H

HB 1738

HB 2127 CFCO

Health Insurance Consumer Hotline

Health Manager (Mayo Clinic)

Healthfinder Espanol

Help Loved Ones With Sensory Overload

HHS – U.S. Department of Health and Human Services

History

Home & Community Based Services Funded Waiver Capacity

Homes to Waters

Hot Tips 2020 booklet

Hot Tips booklet Español

Hours that Count

How is the Budget Created?

HTF – Housing Trust Fund

HUD – Housing and Urban Development

I

I-1163 audit

Improve Investigation of Abuse and Neglect

Improving payment systems and monitoring

Increasing Access and Equality

index-intro

Individual and Family Services

Individual and Family Services – Personal Care

Individual and Family Services Fact Sheet

Individuals with Disabilities Education Act (IDEA)

Infant and Early Childhood

Infant and Early Childhood Conference Registration

Infant Toddler Early Intervention Program (ITEIP) System Improvement Project – The former Children’s Administration is now part of the Department of Children, Youth, and Families and the former Division of Behavioral Health and Recovery is now part of the Health Care Authority. Content that previously was bookmarked through the Department of Social and Health Services website no longer is available.

Influencing the Rule-Making Process In Washington State

Information About the Appeal Process if denied SS Benefits

Information for New and Expectant Parents – From the National Down Syndrome Congress

Informing Families Building Trust (Spanish)

Informing Families, Building Trust

InsureKidsNow.gov

Interactive Collaborative Autism Network (ICAN)

Invest in Life: Growing Your Options – ETF Information Sheet

Invest in Life: Growing Your Options – ETF Information Sheet – Spanish

J

JCAHO: Joint Commission on Accreditation for Healthcare Organizations

JLARC Reports

Journal ‘Pediatrics’ Policy Statement on Emergency Info Forms and Preparedness

Just Like Family:

K

Keys for a Successful Advocacy Day

Keys for a Successful Advocacy Day 2019 Español

Kids as Self-Advocates (KASA)

Kids Health

Kids Quest on Disabilities and Health

King County DD

King County DD agenda

King County DD Board

King County Event Evaluation

L

Lakeland Village Description of Violations 1-27-15

Lakeland Village Termination Letter

LD Online

Learning Disabilities Association of America

Learning Disabilities Association of Washington

Letter to Representative Barney Frank from the Consortium for Citizens with Disabilities

LifeSPAN Network – LifeSPAN’s mission is to support families who have a relative with disabilities plan a safe, secure and quality future for their relatives, beyond the lifetime of the parents.

Look and Listen Language

M

Maintain Housing Trust Fund

March of Dimes

McCleary

MCH Performance Measure Map – 2013

Medicaid Services

Medicaid Update 3/8/17

Medical Home

Military Family Member Program – EFMP – Support for military families with the EFMP program help ensure all active duty families have medical, mental health, and special education needs met.

monthly-daily costs

Muscular Dystrophy Association (MDA)

My Next Steps: A Parent’s Guide to Understanding Autism

N

National Academy of Sciences

National Alliance for the Mentally Ill

National Association for Down Syndrome

National Center on Birth Defects and Developmental Disabilities

National Center on Educational Outcomes (NCEO)

National Center on Secondary Education and Transition

National Center on Workforce and Disability/Adult

National Disability Rights Network

National Dissemination Center for Children with Disabilities

National Housing Trust Fund

National Institute for Urban School Improvement

National Institute of Child Health and Human Development (NICHD)

National Institutes of Mental Health

National Organization for Rare Disorders, Inc.

NDT centers

Neurodevelopmental Centers of Washington

New IFS Waiver DDA documents

NIH Website on Children and Medical Research

No Excuses

No Paid Services Waitlist

Northwest Justice Project – Visit https://www.washingtonlawhelp.org/ for free legal publications and self-help packets. Also in alternate languages.

NPS

Numbers Approved by Service Type and employment type

Nutrition For Children With Special Health Care Needs in Washington State

Nutrition Interventions for Children With Special Health Care Needs – DOH Publication

Nutrition Training Grant CHDD

O

OCR Complaint filed against Shoreline School District No. 412

OEO

OEO report 2014

Office for Victims of Crime

Office of Disability Employment Policy (ODEP)

Office of Public Guardianship

Office of the Education Ombudsman – In 2006, the Washington State Legislature passed House Bill 3127 to establish the Office of the Education Ombuds (OEO) to reduce the opportunity gap by supporting families, students, educators, and communities in understanding the public K-12 education system and resolving concerns collaboratively. The legislature placed us within the Governor’s Office to ensure our independence from the public education system.

Office of the Superintendent of Public Instruction (OSPI)

Office of the Surgeon General

Operating Budget Side-by-Side Comparison

Operating Budget Side-by-Side Comparison: Governor Senate House Final

OPG

Opportunities to Provide Input by Survey:

OSPI Conferences, Trainings & Professional Development

Outdoors For All

Overviews for all reports

P

P2P Back to the Basics

P2P Citations

P2P Virtual Support Groups King Co 2018

P2PUSA Road Map: 1971-2015

PACER CENTER

Paraeducator Training and Testing On-line Course

Parent Coalitions

Parent Coalitions Roster

Parent Help 123: Benefit and resource finder

Parent Mentors Child Welfare

Parent to Parent USA

Parent-to-Parent Support Providers:

Path to Employment Fact Sheet

PAVE

Peer Support Networks

People First of Washington

Personal Care Services for Undocumented

Pierce County agenda

Pierce County Coalition for Developmental Disabilities

Planned and Emergent Short-Term Stays

Planning for Transition to Adulthood for Youth with Developmental and Intellectual Disabilities (CSH

Planning for Transition to Adulthood for Youth with Intellectual and Developmental Disabilities-

Playing on Poisons

POA

POA abuse

Prader-Willi Syndrome Association

Pre-Vocational Employment

Prepare for your Child’s Financial Future

Preparing for Disaster for People with Disabilities and other Special Needs

Projects of National Significance

Protective Factors Survey

Puberty: Special Needs May Complicate Things

Publication Request Form

Q

Quality Assurance Indicators for Persons Who Have Moved From RHCs to the Community – 1988 to 2009

R

Rebuilding Together

Refugee Health (Office of Global Health Affairs)

Report-Amicus Budget

Report-Autism

Report-DD & Alzheimers

Report-DD Ombuds

Report-DDA Survey

Report-Education Ombuds

Report-Family Caregivers

Report-Fircrest Master Plan

Report-McCleary Amicus

Report-Media & Law Enforcement

Report-Transition Plan

Report-TV Reality

Report=DD mental health

Representing Yourself at an Administrative Hearing

residential charts

Residential Choices For Children And Adults

Residential Habilitation Centers (RHC)

Resources About Sexuality & Children/Youth with Disabilities and Chronic Illnesses

Resources for Every Day Help

Resources for Grandparents & Other Relatives Raising Children

Resources in Washington State

Rett Syndrome

RHC and Community Cost Comparison

RHC client counts

RHC Placement Client Counts

RHC Referrals Resulting in Admissions (As of December, 2010)

 

S

Sacred Heart Children’s Hospital Nutrition

SAIL

SAIL 8-2012

SAW one pager

Scholarships for Persons with Disabilities That Help Subsidize Education Expenses

Seattle Children’s Autism 200 Series

Seattle Children’s Continuing Education

Seattle Children’s Medical Staff

Seattle Children’s Quicklinks

Seattle Children’s Center for Children with Special Needs

Section 1 – 75th Anniversary History Book

Self Advocates in Leadership (SAIL)

Self-Advocates Becoming Empowered (SABE)

Sensory and Behavior Challenges: Responses for Law Enforcement

Serious Incident Reports

Sesame Street and Autism

Sex Education for Parents of Children on the Autism Spectrum

Sexuality and Autism: Sex Education for Children and Teens with Autism

Sexuality and Autism: TEACCH Report

Sibling Support Project

SL pay

SL Report

Smart Home Accommodations

Social Security Administration: Benefits for Children with Disabilities

Social Security Benefits For People With Disabilities

Social Security Online Ticket to Work – Contact the Help Line at 1-866-968-7842 or 1-866-833-2967 (TTY) M-F 8 a.m. – 8 p.m. ET, or Send Us an Email Message support@choosework.ssa.gov

Speak Up: A Guide to Self-Advocacy

Special Education Technology Center (SETC)

Special Needs Project

Special Olympics

Special Olympics of Washington State

Spina Bifida Association of America

Spina Bifida Association of Washington State

SS Benefits Eligibility Screening Tool

SS/SSI Debit Card

SSA BEST Benefits

Starting Point: Resource Booklet

Starting Wage for Supported Living Direct Support Staff

State Operated Living Alternative (SOLA)

State Supplementary Payment Fact Sheet

State-Federal Cost Per Day SOLA VPP

Statewide Consistent Budget Message

STOMP: Specialized Training of Military Parents – Provides families with federal information to gain a a better understanding of how to navigate through educational and medical systems when they have a child who has exceptional/special needs.

Supplemental Budget Comparisons for Programs/Services

Support Employment for all in Washington State

Support Group King Co Social Gathering Evaluation

Supported Employment

Supported Employment Chart

Supported employment updated

Supported Living

Supported Living Direct Support Professionals

Supported Living Direct Support Professionals

Supported Living Minimum Wage

Supported Living Services

Supporting and Protecting Children, Youth and Families – July 1, 2018, the Department of Early Learning (DEL) became the Department of Children, Youth, and Families (DCYF).

T

Talk About Program Evaluation Tool (forms)

Talk Autism

TASH

Teacher Resources

Tech Tips: Apps 101 – for Androids

Tech Tips: Apps 101 – For Apple

Technology Resources For Individuals with Disabilities

Techsoup

Text-Based Peer Support

The 20th Anniversary of the Americans With Disabilities Act

The Arc 75th-1

The Arc 75th-2

The Arc 75th-3

The Arc agenda

The Arc of Cowlitz Valley

The Arc of Grays Harbor

The Arc of King County

The Arc of Snohomish County

The Arc of Spokane County

The Arc of the Peninsulas

The Arc of the United States

The Arc of the United States: Legislative and Action Center

The Arc of the United States: Media Center

The Arc of Tri-Cities

The Arc of WA agenda

The Arc of WA brochure

The Arc of WA brochure – Spanish

The Arc of Washington State’s 75th Anniversary

The Arc of Washington’s Membership Form

The Arc of Whatcom County

The Arc US Convention

The Budget Control Act of 2011

The Circles Curriculum

The First Signs

The Future of Medicaid is in Your Hands – Action 1

The Haves and the Have-Nots

The History of State and National Activities, Events and Policies – booklet

The History of State and National Activities, Events and Policies – Spanish booklet

The Institute on Community Integration

The Puzzle of Autism

The Research and Training Center on Community Living

The Special Education Support Center

The Washington Assistive Technology Foundation (WATF)

The White House

Through the Looking Glass

Tips on Beginning a New School Year for Children with Autism

Tips on Talking With Your Young Child About Sex

Toxic Free Kids & Families

Toxic-Free Kids and Families Act

Transition Notebook (Adolescent Health Transition Project)

Transition Students by Region

Transition to Adult Life: A Shared Responsibility

Transition to Adulthood and Financial Planning (Arc of Tri-Cities)

Transitioning to Adult Health Care Poster

U

Una lista para la transición a la atención de adultos – Checklist for Transitioning to Adult Health Care (Spanish version)– Created by parents for parents to help understand what may lie ahead in planning for transitioning their child to an adult healthcare provider

Understanding the Bigger Picture

United Cerebral Palsy (UCP)

United Healthcare Children’s Foundation

United States House of Representatives

United States Senate

University of Washington Autism Center

University of Washington/Department of Rehabilitation Medicine

US Office of Personnel Management

Useful Tools to Keep Multicultural Families Engaged and Motivated

UW Autism Center Early Start Denver Model Workshop (ESDM)

V

Valued Lives: Inspired Living

Velo-Cardio-Facial Syndrome Educational Foundation, Inc. – 22q11.2 Deletion syndrome or 22q (also referred to as Velocardiofacialsyndrome (VCFS), and/or DiGeorge syndrome) is a disorder caused by a small missing piece of the 22nd chromosome. This tiny missing portion of chromosome 22 can affect every system in the human body. 22q can be the cause of nearly 200 mild to serious health and developmental issues in children.

Violet Sees Free Glasses Program – WE can help you afford glasses for your child. Check out- https://www.violetsees.org/glasses Violet Sees Free Glasses Program CAN WE HELP YOU AFFORD GLASSES FOR YOUR CHILD? Please complete our Qualification Questionnaire to help us determine if your family would be a good fit for our program! You will hear back from us shortly after completing. If you have any questions or run into any problems, please email: JEN@VIOLETSEES.ORG

Voluntary Placement Services

W

WA DOH Oral Health Program

WA State Parent Coalitions

wage parity

Wage Parity for Direct Support Staff

Waiver Client Information

waiver IFS charts

waiver RHC costs

Waivers

Waivers and RHC Average Monthly Cost

Washington Association for the Education of Young Children (WAEYC)

Washington Department of Social and Health Services (DSHS)

Washington Education Association (WEA)

Washington Educational Service Districts (ESDs)

Washington Human Rights Commission (HRC)

Washington Initiative for Supported Employment (WISE)

Washington Office of Superintendent of Public Instruction (OSPI)

Washington PAVE

Washington Sensory Disabilities Services

Washington State Child Care Resource & Referral Network

Washington State Division of Vocational Rehabilitation (DVR)

Washington State DSHS Developmental Disabilities Administration

Washington State Hands and Voices

Washington State Legislative Evaluation and Accountability Program (LEAP) Committee

Washington State Legislature

Washington State Life Opportunities Trust (Endowment Trust Fund)

Washington State Parent Coalitions

Washington State School for the Blind

Washington State Special Education Coalition (WSSEC)

Washington Talking Book and Braille Library

Washington Yellow Pages for Kids with Disabilities

Wee Care

Wee Care Agenda

Welfare Reform and SSI Childhood Disability

Western States Genetic Services Collaborative

What the Social Security Office has to say about Special Needs Trusts

What’s Next? – A Vision of the Future Español booklet

What’s Next? – A Vision of the Future booklet

Where Do They Live

Where People Live—Type of Residence by Region

Where RHC Guardians Live

Who’s Got You Covered

Williams Syndrome Office

Wings for Autism

Winning In College: A Guide For Students With Disabilities

WithinReach (Formerly Healthy Mothers, Healthy Babies)

X

Y

Your Idea Can Be a State Law

Your Idea Can Be a State Law 2018 Español

YVS volunteer

 

Z

 

Find by subject

Abuse

Advocacy

Autism

Diagnosis

Disaster preparedness

DSHS – DDA Developmental Disabilities Administration

Early Childhood

Education

Employment and Transition

Federal and Social Security

Health

Parent support

Publications

Recreation and Transportation

Sex education

Siblings

Spanish

Washington State