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“Thicker Than Water: Essays by Adult Siblings of People with Disabilities”
https://www.amazon.com/Thicker-Than-Water-Siblings-Disabilities/dp/1890627917 (click here)
Bound by blood, but not always by love, a sibling can be your friend or rival, defender or detractor–sometimes simultaneously! But what’s the impact on that bond when one sibling has a disability?
In this thought-provoking essay collection, thirty-nine adult siblings reflect on how their lives have been indelibly shaped by their relationship with a brother or sister with special needs. Edited by Don Meyer, creator of Sibshops and an expert on sibling issues, Thicker Than Water reveals both positive and negative aspects of growing up with someone who might have received the lion s share of his parents attention or who now requires extra support as an adult.
For more sibling support information go to website: www.siblingsupport.org
“I am the one who gets to go home feeling happy to be part of the ripple effect of so much good.”~~Bobbi Bjork (Clark County P2P)
Produced by Genetics Alliance in collaboration with National Family Voice and Parent to Parent USA. It contains more than 250 resources and tools for individuals with special needs and their families.
ACDS programs deliver on our mission statement – to serve individuals with developmental disabilities throughout their lifetime. Our programs encompass three broad age categories: Early childhood and preschool years, 5 years plus, and adult years.
(ADDA) Information, resources, articles, services, support groups and more for individuals with attention deficit disorder.
AIM is designed to provide high-quality information and professional development for anyone who supports, instructs, works with, or lives with someone with autism.
A statewide lending library and resource-linked website or resources for educators and parents with special education needs. Some of the materials are available in Korean and Spanish languages.
Autism Spectrum Disorders are a group of developmental disabilities that can cause significant challenges in communication, behavior and social interactions. Typically appearing within the first three years of life, autism affects each individual differently. Early screening, diagnosis, and services are essential to get the best results for children with autism.
The vision of the Autism Society of Washington is that every person with autism has the opportunity to achieve his/her fullest potential and be fully included in communities across Washington State.
Fifteen Tips for Your Family – As a result of her work with many families who deal so gracefully with the challenges of autism, Family Therapist, Kathryn Smerling, Ph.D., offers these five tips for parents, five for siblings and five for extended family members:
A tool kit to assist members of the school community in understanding and supporting students with autism.
For individuals or family members wanting to learn more about autism or Asperger syndrome
Washington State Health Care Authority
Talking with Kids about Tough Issues
Lettercase booklets for expectant parents who’ve received a prenatal diagnosis of a genetic condition
Bookshare makes reading easier. People with dyslexia, blindness, cerebral palsy, and other reading barriers can customize their experience to suit their learning style and find virtually any book they need for school, work, or the joy of reading.
Organizing your child’s health information not only helps you, but can help providers or other caregivers to better know and support your child. We spoke with parents to hear what they have learned about organizing all the paperwork, appointments, schedules and other information needed to care for their child.
Cornelia de Lange Syndrome Foundation
CCTS is a state- and contract-funded project housed in the College of Education at Seattle University.
After 20 years serving families of children with special needs, due to a loss of state funding, the Center for Children with Special Needs has closed its doors effective September 30, 2018. During the coming months, many resources on CSHCN.org will become available on SeattleChildrens.org. It has been a pleasure serving you, getting to meet you, and helping you find resources for your child. Thank you.
Much of the rich library of materials and publications that NICHCY produced over the years has a new home here, on this website of the Center for Parent Information and Resources (CPIR).
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) creating and implementing programs and services in response to the needs of adults and families affected by ADHD through collaborative partnerships and advocacy, including training for parents and K-12 teachers, hosting educational webinars and workshops, being an informative clearinghouse for the latest evidence-based ADHD information, and providing information specialists to support the ADHD community.
Children and Adults with Attention-Deficit/Hyperactivity Disorder
(Missouri Family to Family February 2014) & WA DSHS What to do and when to do it – for students with a developmental disability.
A Division of Healthy Childcare Consultants, Inc.
Members of the Early Learning Advisory Council (ELAC) gathered for their final meeting under the Department of Early Learning (DEL) earlier this month. The council discussed topics ranging from the new early learning facilities grant program to the July 1, 2018 transition to the Department of Children, Youth, and Families (DCYF).
Washington Department of Children, Youth and Families
Washington Kindergarten Inventory of Developing Skills (WaKIDS) Alert: Beginning July 1, 2018, the Department of Early Learning will become the Department of Children, Youth, and Families (DCYF). After June 30, 2018, this website will no longer be updated. For the latest information on early learning, visit the DCYF website at www.dcyf.wa.gov.
The Disability Resource Community is a platform designed for people with disabilities, their family members and caregivers to ask questions, share resources and build community around the things that matter most.
No longer a site but Connecting the Disability Community to Information and Opportunities use ODEP Office of Disability Employment Policy site.
FEMA-For the millions of Americans who have physical, medical, sensory or cognitive disabilities, emergencies such as fires, floods and acts of terrorism present a real challenge. The same challenge also applies to the elderly and other special needs populations. This booklet will help people with disabilities prepare and emergency plan to protect themselves, family, friends, personal care assistant and others in the support network in the event of an emergency. Post the plan where everyone will see it, keep a copy with you and make sure everyone involved in your plan has a copy.
From the National Down Syndrome Congress.
Order Printed Books, DVDs and Videos Go to the Department of Printing’s Myfulfillment.wa.gov They are always prepackaged in set quantities of books or DVDs for student teaching.
From the NE Texas Public Health District
A Powerful Voice for Fathers and Families of Children with Special Health Care Needs. We do our work by connecting men with each other and with resources and information, by training men to tell their story and advocate for change and by working to promote inclusion.
A resource for teens with disabilities.
Advocates for Youth
Look up Diseases & Conditions (Mayo Clinic)
Washington State Health Care Authority
Welcome to the U.S. Department of Education’s Individuals with Disabilities Education Act (IDEA) website, which brings together IDEA information and resources from the Department and our grantees.
The former Children’s Administration is now part of the Department of Children, Youth, and Families. The former Division of Behavioral Health and Recovery is now part of the Health Care Authority.
The former Children’s Administration is now part of the Department of Children, Youth, and Families and the former Division of Behavioral Health and Recovery is now part of the Health Care Authority. Content that previously was bookmarked through the Department of Social and Health Services website no longer is available. July 1, 2018, the Department of Early Learning became the Department of Children, Youth, and Families (DCYF).
From the National Down Syndrome Congress
Developmental Disabilities Administration Services & Programs
A partnership for communication on developmental disabilities issues in Washington State
UW Autism Center
The safety of children remains the utmost priority for all NIH research studies.
A 501(c)(3) non profit that exists to support individuals with FASD and their families both with direct support and by connecting them with resources in their communities. We are the Washington State Affiliate to the National Organization on Fetal Alcohol Syndrome. We offer support groups (both virtual and in person when covid allows) for parents and caretakers, training and advocacy. There is no fee for our services.
In 2006, the Washington State Legislature passed House Bill 3127 to establish the Office of the Education Ombuds (OEO) to reduce the opportunity gap by supporting families, students, educators, and communities in understanding the public K-12 education system and resolving concerns collaboratively. The legislature placed us within the Governor’s Office to ensure our independence from the public education system.
The Special Education Resource Library is intended to provide guidance and professional development resources on behalf of students with disabilities.
Our vision that people of all abilities recreate wherever and whenever they choose.
From the University of Michigan.
Kinship Care – Are you a grandparent or other family member raising a relative’s child? You are not alone. More than 47,000 individuals in Washington State are caring for one or more relative children (out of a total of 51,000). The financial, legal, and emotional issues of raising a relative’s child can be challenging. Services and support when raising a relative’s child can be a lifesaver.
English, Spanish and Vietnamese (from Informing Families) Strategies to Support Real Lives: Connecting to Resources in WA State
Due to loss of funding from the Washington State Department of Health as of October 1, 2018, the Linkages newsletter will no longer be published. Please contact Beth.Crispin@seattlechildrens.org if you have any questions.
The active medical staff at Seattle Children’s Hospital is comprised of over 1,200 physicians and other providers. They represent all of the pediatric medical and surgical specialties – general pediatrics as well as family practice.
On-line Servies for Patients and Families
Sex Education for Individuals with Autism – Matching Programmes to levels of functioning
Founded in 1990, the Sibling Support Project is the first national program dedicated to the life-long and ever-changing concerns of millions of brothers and sisters of people with special health, developmental, and mental health concerns.
July 1, 2018, the Department of Early Learning (DEL) became the Department of Children, Youth, and Families (DCYF).
This program helps students “see” social distance and explains levels of intimacy and how those levels can change over time.
Guide designed for education personnel working with students with ASD.
National Resource Center for Parents with Disabilities, is a community based nonprofit organization.
American Academy of Pediatrics and HealthyChildren.org
UCP affiliates provide services and support on a community-by-community basis, serving the unique needs of people with disabilities in their region.
Our mission is to improve children’s lives and help families gain access to the care they need through medical grants. Helping Kids. Changing Lives
Valued Lives’ passion is to empower vulnerable people to have real choice, real control and a genuine voice in the design, planning and delivery of their own supports and services.
22q11.2 Deletion syndrome or 22q (also referred to as Velocardiofacialsyndrome (VCFS), and/or DiGeorge syndrome) is a disorder caused by a small missing piece of the 22nd chromosome. This tiny missing portion of chromosome 22 can affect every system in the human body. 22q can be the cause of nearly 200 mild to serious health and developmental issues in children.
WE can help you afford glasses for your child. Check out- https://www.violetsees.org/glasses Violet Sees Free Glasses Program CAN WE HELP YOU AFFORD GLASSES FOR YOUR CHILD? Please complete our Qualification Questionnaire to help us determine if your family would be a good fit for our program! You will hear back from us shortly after completing. IF YOU HAVE ANY QUESTIONS OR RUN INTO ANY PROBLEMS, PLEASE EMAIL JEN@VIOLETSEES.ORG
Oral Health for People with Special Needs & Educational Materials Oral Health Promotion Card and Brochure for Children with Special Needs are also available in Spanish.
(created by Walla Walla P2P)
As a Department we are tied together by a single mission: to transform lives. Each administration within DSHS has a refined focus on this mission.
Our programs and services help prevent illness and injury, promote healthy places to live and work, provide education to help people make good health decisions and ensure our state is prepared for emergencies.
Serving Washington since 1989
A Vision of the Future: The key is being prepared