The Arc of Washington State maintains this Resource Guide to enhance public access to information about services and resources available to residents in the State of Washington.
Non-profit and state and federal agencies, and a comprehensive list of documents that support intellectual and developmental disability issues will be listed in this Resource Guide.
The inclusion of any organization, agency or service in this resource guide does not imply or constitute an endorsement or recommendation, nor does exclusion imply disapproval.
The Arc of Washington State neither guarantees nor makes any representation as the accuracy or completeness of the information contained in its Resource Guide or external links.
Diversidad Cultural (Español)
Find alphabetically by name-click on corresponding letter.
| A | B | C | D | E | F | G | H | I | J |
| K | L | M | N | O | P | Q | R | S | T |
| U | V | W | X | Y | Z |
A
A Sense of Fulfillment-A New and Different Sense of Purpose
Abuse Reporting Information for Vulnerable Adults
Academic Accommodations for Students – As the number of individuals being diagnosed with learning disabilities has increased, so have the understanding and utilization of academic and technological strategies for accommodation. Achieving equal access through accommodations and universal design. Members of the largest group of students with disabilities have learning disabilities.
Acronyms in the Developmental Disability World
Action Network 2020 brochure
Action Network brochure (Spanish)
Adaptive Star Mobility Inc. – Adaptive Star was founded in 2009 with the purpose of providing families with alternative indoor/outdoor mobility products.
ADDM – The Autism and Developmental Disabilities Monitoring Network
Adult Abuse, Neglect and Exploitation
Advocacy ATLAS: Accessible Tools for Leadership and Advocacy Success
Advocacy Partnership Project Español
Advocacy Partnership Project 2020 brochure
American Association of People with Disabilities (AAPD) – The American Association of People with Disabilities is a convener, connector, and catalyst for change, increasing the political and economic power of people with disabilities.
American Association on Intellectual and Developmental Disabilities (AAIDD) – Criteria for ID Now Available in Eight Additional Languages! – AAIDD is pleased to make available translations of the three-pronged definitional/diagnostic criteria for intellectual disability on its website. http://bit.ly/2WqaRVF
Article from the Centralia Chronicle 4/10/12: “Coping With Autism”
Association for Children with Down Syndrome (ACDS) – ACDS programs deliver on our mission statement – to serve individuals with developmental disabilities throughout their lifetime. Our programs encompass three broad age categories: Early childhood and preschool years, 5 years plus, and adult years.
Attention Deficit Disorder Association
Autism Project – WA Department of Health
Autism Research at the National Institute of Child Health and Human Development (NICHD)
Autism Society of Washington State
Autism Speaks: Autism & Your Family
Autism Speaks: School Community Tool Kit
B
Basic Health Information for WA
Bates Technical College Paraeducator Training
Batten Disease Support and Research Association
Beginning the Conversation: From Children Now and the Kaiser Family Foundation
Being An Effective Advocate 2020
Being an Effective Advocate Español
Benefits Eligibility Screening Tool
Benefit Planning Services through Benefit U. Click on your county, if available, to book a new customer intake meeting and fill out the necessary intake forms. A color-coded map illustrates which Washington Counties are currently open for services. Bulletin (pdf) page 1 and page 2
Booklets about prenatal diagnosis of a genetic conditBookshare: Accessible Books and Periodicals for Readers with Print Disabilities
Brain Injury Association of America
Brain Injury Association of Washington
C
Center for Change in Transition Services
Center for Children with Special Needs (now Seattle’s Children)
Center for Independence (CFI)
Center for Parent Information and Resources (NICHCY)
Center on Human Development and Disability (UW)
Centers for Medicare and Medicaid Services
CFP – Cerebal Palsy Foundation
Cerebral Palsy Risk Factors | Cerebral Palsy Guidance
CHADD – Children and Adults with Attention-Deficit/Hyperactivity Disorder
Checklist for Transitioning to Adult Health Care
Child Health Information and Resources
Children with Special Health Care Needs (CSHCN)
Children with Special Needs WA Calendar of Events
Children’s Health Insurance Program (CHIP)
Compassionate Schools: The Heart of Learning and Teaching
Council of Exceptional Children (CEC)
Creating a Home Where Your Child Can Thrive with a Disability
CSHCN: Teen Transition to Adult Healthcare
D
Dental Care Guidance for Patients with Special Needs
Department of Education, Office of Special Education and Rehabilitative Services
Department of Labor – Disability Resources
Developmental Disabilities Administration Fact Sheets
Developmental Disabilities Council (DDC)
Disability and Health Emergency Preparedness (CDC)
Disability Government Information
Disability History Museum/Library and Education
Disaster Preparedness For Children With Special Nutrition Needs
Disaster Preparedness for People with Disabilities
Discussing Down Syndrome: A Physician’s Guide
Down Syndrome Affiliates in Action
E
Early Support for Infants and Toddlers
Easter Seals Society of Washington
Eligibility for Developmental Disabilities Services
Emergency Dentist USA (Washington)
Emergency Evacuation Preparedness: Taking Responsibility for Your Safety
Emergency Preparedness Resources for Deaf, Blind and Limited Sight Populations
Emergency Preparedness for Wildfires
Epilepsy Support Groups and Organizations
F
Facts About the HCBS 5 New Waviers
Facts About the HCBS 5 New Waviers (Spanish)
Families and Advocates Partnership for Education (FAPE)
Family Community Connections Guidebook
Family Voices of Washington State
FEAT of Washington (Families for Effective Autism Treatment)
Federal Benefits and State Services
Federal Benefits and State Services – Spanish
Fetal Alcohol Syndrome Family Resource Institute
Fetal Alcohol Syndrome – National Organization Fetal Alcohol Syndrome Washington State (NOFASWA)
Free Tool to Know and Share Family Health History
G
Going to Work: A Guide to SS Benefits
Guardianship booklet
Guardianship booklet Spanish
Guía de Cuidado Dental para Pacientes con Síndrome de Down
H
Health Insurance Consumer Hotline
Help Loved Ones With Sensory Overload
HHS – U.S. Department of Health and Human Services
Hot Tips 2020 booklet
Hot Tips booklet Español
HUD – Housing and Urban Development
I
Individuals with Disabilities Education Act (IDEA)
Infant and Early Childhood Conference Registration
Infant Toddler Early Intervention Program (ITEIP) System Improvement Project – The former Children’s Administration is now part of the Department of Children, Youth, and Families and the former Division of Behavioral Health and Recovery is now part of the Health Care Authority. Content that previously was bookmarked through the Department of Social and Health Services website no longer is available.
Influencing the Rule-Making Process In Washington State
Information About the Appeal Process if denied SS Benefits
Information for New and Expectant Parents – From the National Down Syndrome Congress
Informing Families Building Trust (Spanish)
Informing Families, Building Trust
Interactive Collaborative Autism Network (ICAN)
Invest in Life: Growing Your Options – ETF Information Sheet
Invest in Life: Growing Your Options – ETF Information Sheet – Spanish
J
JCAHO: Joint Commission on Accreditation for Healthcare Organizations
Journal ‘Pediatrics’ Policy Statement on Emergency Info Forms and Preparedness
K
Keys for a Successful Advocacy Day
Keys for a Successful Advocacy Day 2019 Español
Kids Quest on Disabilities and Health
L
Learning Disabilities Association of America
Learning Disabilities Association of Washington
LifeSPAN Network – LifeSPAN’s mission is to support families who have a relative with disabilities plan a safe, secure and quality future for their relatives, beyond the lifetime of the parents.
M
Military Family Member Program – EFMP – Support for military families with the EFMP program help ensure all active duty families have medical, mental health, and special education needs met.
Muscular Dystrophy Association (MDA)
My Next Steps: A Parent’s Guide to Understanding Autism
N
National Alliance for the Mentally Ill
National Association for Down Syndrome
National Center on Birth Defects and Developmental Disabilities
National Center on Educational Outcomes (NCEO)
National Center on Secondary Education and Transition
National Center on Workforce and Disability/Adult
National Disability Rights Network
National Dissemination Center for Children with Disabilities
National Institute for Urban School Improvement
National Institute of Child Health and Human Development (NICHD)
National Institutes of Mental Health
National Organization for Rare Disorders, Inc.
Neurodevelopmental Centers of Washington
NIH Website on Children and Medical Research
NOFAS Washington State We are the Washington State Affiliate to the National Organization on Fetal Alcohol Syndrome.
Northwest Justice Project – Visit https://www.washingtonlawhelp.org/ for free legal publications and self-help packets. Also in alternate languages.
Nutrition For Children With Special Health Care Needs in Washington State
Nutrition Interventions for Children With Special Health Care Needs – DOH Publication
O
Office of Disability Employment Policy (ODEP)
Office of the Education Ombudsman – In 2006, the Washington State Legislature passed House Bill 3127 to establish the Office of the Education Ombuds (OEO) to reduce the opportunity gap by supporting families, students, educators, and communities in understanding the public K-12 education system and resolving concerns collaboratively. The legislature placed us within the Governor’s Office to ensure our independence from the public education system.
Office of the Superintendent of Public Instruction (OSPI)
OSPI Conferences, Trainings & Professional Development
P
P2P Virtual Support Groups King Co 2018
Paraeducator Training and Testing On-line Course
Parent Help 123: Benefit and resource finder
Pierce County Coalition for Developmental Disabilities
Planning for Transition to Adulthood for Youth with Intellectual and Developmental Disabilities-
Prader-Willi Syndrome Association
Prepare for your Child’s Financial Future
Preparing for Disaster for People with Disabilities and other Special Needs
Projects of National Significance
Q
R
Refugee Health (Office of Global Health Affairs)
Representing Yourself at an Administrative Hearing
Resources About Sexuality & Children/Youth with Disabilities and Chronic Illnesses
Resources for Grandparents & Other Relatives Raising Children
S
Sacred Heart Children’s Hospital Nutrition
Scholarships for Persons with Disabilities That Help Subsidize Education Expenses
Seattle Children’s Autism 200 Series
Seattle Children’s Continuing Education
Seattle Children’s Medical Staff
Seattle Children’s Center for Children with Special Needs
Self Advocates in Leadership (SAIL)
Self-Advocates Becoming Empowered (SABE)
Sex Education for Parents of Children on the Autism Spectrum
Sexuality and Autism: Sex Education for Children and Teens with Autism
Sexuality and Autism: TEACCH Report
Social Security Administration: Benefits for Children with Disabilities
Social Security Administration: Helping People File For SSI – https://www.ssa.gov/thirdparty/groups/vulnerable-populations.html
Social Security Administration: Information for People Helping Others – https://www.ssa.gov/thirdparty/
Social Security Administration: SS Information in Other Languages – https://www.ssa.gov/site/languages/en/
Social Security Benefits For People With Disabilities
Social Security Online Ticket to Work – Contact the Help Line at 1-866-968-7842 or 1-866-833-2967 (TTY) M-F 8 a.m. – 8 p.m. ET, or Send Us an Email Message support@choosework.ssa.gov
Speak Up: A Guide to Self-Advocacy
Special Education Technology Center (SETC)
Special Olympics of Washington State
Spina Bifida Association of America
Spina Bifida Association of Washington State
SS Benefits Eligibility Screening Tool
STOMP: Specialized Training of Military Parents – Provides families with federal information to gain a a better understanding of how to navigate through educational and medical systems when they have a child who has exceptional/special needs.
Supporting and Protecting Children, Youth and Families – July 1, 2018, the Department of Early Learning (DEL) became the Department of Children, Youth, and Families (DCYF).
T
Tech Tips: Apps 101 – for Androids
Tech Tips: Apps 101 – For Apple
Technology Resources For Individuals with Disabilities
The Arc of Cowlitz County / LifeWorks
The Arc of the United States: Legislative and Action Center
The Arc of the United States: Media Center
The Arc of WA brochure – Spanish
The Arc of Washington’s Membership Form
The History of State and National Activities, Events and Policies – booklet
The History of State and National Activities, Events and Policies – Spanish booklet
The Institute on Community Integration
The Research and Training Center on Community Living
The Special Education Support Center
The Washington Assistive Technology Foundation (WATF)
Tips on Beginning a New School Year for Children with Autism
Tips on Talking With Your Young Child About Sex
Transition Notebook (Adolescent Health Transition Project)
Transition to Adult Life: A Shared Responsibility
Transitioning to Adult Health Care Poster
U
United Healthcare Children’s Foundation
United States House of Representatives
University of Washington Autism Center
University of Washington/Department of Rehabilitation Medicine
US Office of Personnel Management
UW Autism Center Early Start Denver Model Workshop (ESDM)
V
Velo-Cardio-Facial Syndrome Educational Foundation, Inc. – 22q11.2 Deletion syndrome or 22q (also referred to as Velocardiofacialsyndrome (VCFS), and/or DiGeorge syndrome) is a disorder caused by a small missing piece of the 22nd chromosome. This tiny missing portion of chromosome 22 can affect every system in the human body. 22q can be the cause of nearly 200 mild to serious health and developmental issues in children.
Violet Sees Free Glasses Program – WE can help you afford glasses for your child. Check out- https://www.violetsees.org/glasses Violet Sees Free Glasses Program CAN WE HELP YOU AFFORD GLASSES FOR YOUR CHILD? Please complete our Qualification Questionnaire to help us determine if your family would be a good fit for our program! You will hear back from us shortly after completing. If you have any questions or run into any problems, please email: JEN@VIOLETSEES.ORG
W
Washington Association for the Education of Young Children (WAEYC)
Washington Department of Social and Health Services (DSHS)
Washington Education Association (WEA)
Washington Educational Service Districts (ESDs)
Washington Human Rights Commission (HRC)
Washington Initiative for Supported Employment (WISE)
Washington Office of Superintendent of Public Instruction (OSPI)
Washington Sensory Disabilities Services
Washington State Child Care Resource & Referral Network
Washington State Division of Vocational Rehabilitation (DVR)
Washington State DSHS Developmental Disabilities Administration
Washington State Hands and Voices
Washington State Legislative Evaluation and Accountability Program (LEAP) Committee
Washington State Life Opportunities Trust (Endowment Trust Fund)
Washington State Parent Coalitions
Washington State School for the Blind
Washington State Special Education Coalition (WSSEC)
Washington Talking Book and Braille Library
Washington Yellow Pages for Kids with Disabilities
Welfare Reform and SSI Childhood Disability
Western States Genetic Services Collaborative
What the Social Security Office has to say about Special Needs Trusts
What’s Next? – A Vision of the Future Español booklet
What’s Next? – A Vision of the Future booklet
Winning In College: A Guide For Students With Disabilities
WithinReach (Formerly Healthy Mothers, Healthy Babies)
X
Y
Your Idea Can Be a State Law 2018 Español
Z
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DSHS – DDA Developmental Disabilities Administration
