To Whom it May Concern:
I cannot say enough about the Parent to Parent organization. When my son was unexpectedly born with multiple congenital anomalies and later diagnosed with Cerebral Palsy and Epilepsy I was stuck in an emotional black hole. I had not even begun to comprehend the magnitude of what lay ahead when a home health nurse asked if I had been “hooked up” with Parent to Parent yet. I questioned her because I had never heard of the organization before and had no idea what it could offer me.
I was in for a wonderful surprise when I made the call. Since my son was under 3 years of age my family was assigned a Family Resource Coordinator. This is what I later learned to be an extremely valuable position. A person only knows what they have experienced or read about and cannot truly understand what lay ahead if no one is there to guide them along. I had no idea that a Birth to Three program existed for developmentally challenged children. My FRC informed me that it would be an early start to school for my son since he would need extra time and services to level the playing field for him.
Not only did P2P get us involved in the school system, they provided a multitude of community resources for things ranging from individual funding, healthcare services, educational materials/classes, and so much more. Still this does not describe the full spectrum of Parent to Parent’s services. Several community events that are more accessible and more accepting of disabled individuals are put on by P2P each year. These events help children realize that there are others like them and that they can grow up to be functioning adults.
The toy and equipment loan program is another valuable asset that P2P has. Families that have items which are no longer being used donate their things to P2P. This is a spectacular place to go to find enticing toys for the sensory challenged child as well as positional equipment that is very expensive and all too often not covered by health insurance.
As my son has grown and is now out of the Birth to Three program our needs have changed. Parent to Parent has been there to meet these new needs and is still a very important part of our lives. Presently I attend a monthly Mom to Mom meeting, through P2P, where moms of disabled children meet and discuss our trials and triumphs. This group means a lot to me; the women are all so understanding and they listen without judgment. I hope that you take my words to heart today and see the need to keep funding a fabulous program.